We are a dedicated NGO in India championing the rights, healthcare, and dignity of individuals living with rare diseases through community support and sustainable development.
"There is power within every one of us. All it requires is a right environment."
— Foundation MottoFacilitating access to rare disease treatments.
Scholarships and inclusive learning environments.
Skill building for financial independence.
Extending care to remote corners of India.
Promoting accessibility in green spaces.
Stories and volumes written by our warriors, for the world.
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Transforming voices and empowering authors. We take your manuscript from a dream to global readers.
Optimization and conversion of manuscripts to ePUB formats, published on Kindle, Kobo, and global platforms.
High-quality paper, premium cover printing, and print-on-demand setups to keep your book in stock globally.
Comprehensive developmental editing, copyediting, and proofing in both Hindi and English by experienced editors.
Collaborative biography and memoir writing. Let our professional writers shape your life story into a book.
Elegant typesetting, margin adjustments, header/footer design, and interior layouts optimized for all print sizes.
A final meticulous review of formatting, grammar, punctuation, and typos prior to publishing launch.
Official ISBN registration with the national agency, securing copyright metadata and unique barcoding for your book.
Creative, high-impact front and back cover designs tailored to fit your genre and captivate readers' attention.
Publishing collaborative books, managing contributor copyrights, and compiling collective writings and stories.
Social media campaigns, author interviews, press releases, mockups, and book launch marketing strategies.
Availability across Amazon, Flipkart, Kindle, and bookstore catalog feeds, making your book orderable globally.
Interactive masterclasses and hands-on workshops guiding authors through self-publishing and writing tips.
Empowering rare warriors and creative minds to share their stories with the world.
Get in touch directly with our support team or book a consultation call.
Our mission is to empower Rare Warriors, Persons with Disabilities (PwD), and writers from Economically Weaker Sections (EWS) by sharing their unique journeys. Through the "Sponsor an Author" initiative, generous donors fund the publication of their books, giving voice to silent struggles and sharing stories of hope.
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Life skills and advocacy mentorship.
Mental health and care coordination.
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Foundational Add-on Course in Clinical Research.
Sickle Care Foundation
TT Trusts
SLC
Hospitals
Sickle Care Foundation
TT Trusts
SLC
Witness the incredible journey of our community members overcoming daily challenges with a smile.
Watch More on Our YouTube ChannelA visual chronicle of our awareness campaigns, health check-up camps, and nursing seminars dedicated to empowering the rare disease community.
A dedicated awareness program creating understanding, dignity, and life-saving pathways for rare disease warriors across India through a community contribution of just ₹51 every month.
A rare disease (often referred to as an "orphan disease") is a health condition that affects a small percentage of the population compared to common illnesses. Most rare diseases are chronic, debilitating, and life-threatening. Approximately 80% are genetic in origin, often manifesting during early childhood, though others stem from rare infections, auto-immune conditions, or toxicities. Over 7,000 distinct rare diseases have been identified globally, with fewer than 5% having approved targeted medical therapies.
300 Million to 400 Million People Worldwide
Globally, an estimated 300 million to 400 million people live with a rare disease, representing roughly 6% to 8% of the world's population. Definitions vary by country: the World Health Organization (WHO) characterizes a rare condition as having a prevalence of 10 or fewer per 10,000 people, whereas the United States defines it as affecting fewer than 200,000 people, and the European Union defines it as no more than 5 in 10,000.
Nearly 1/4th of the Global Rare Disease Burden
Due to limited epidemiological registries, India does not have a single standard threshold definition, but extrapolations estimate that 70 million to 96 million Indians live with rare diseases. India accounts for nearly one-quarter of the global rare disease burden. Frequently reported disorders include Haemophilia, Thalassemia, Sickle Cell Anaemia, Primary Immunodeficiency Disorders, Spinal Muscular Atrophy (SMA), and Lysosomal Storage Disorders (such as Gaucher and Pompe diseases).
Under the National Policy for Rare Diseases (NPRD), the Ministry of Health and Family Welfare has designated premier tertiary hospitals as Centres of Excellence (CoEs) for diagnosis, prevention, and treatment. Eligible patients can access financial assistance of up to ₹50 Lakhs for treatment at these notified centres. Key notified CoEs across India include:
A lack of clinical awareness among primary care physicians and scarce advanced genetic testing facilities often lead to multiple misdiagnoses and delays of 5 to 7 years before a correct diagnosis is reached.
Many rare conditions require lifelong orphan drugs or enzyme replacement therapies costing between ₹20 Lakhs to several Crores annually, causing catastrophic out-of-pocket expenses.
Advanced geneticists and designated CoEs are primarily concentrated in metropolitan and capital cities, creating severe travel and logistical barriers for rural families.
Families often face social isolation, genetic stigma during matrimonial processes, emotional exhaustion, and inadequate specialized respite care.
Organizing grassroots campaigns, observing Rare Disease Day, and educating schools and workplaces reduces social stigma and encourages early clinical screening.
Forming local parent-support circles helps caregivers share navigational advice, manage burnout, and advocate collectively for institutional policy implementation.
Providing community-led mutual aid, transport support to tertiary CoEs, and financial contributions bridges the gap for non-medical expenses and therapy costs.
Schools and community spaces can adapt infrastructure, train educators, and offer inclusive recreational programs so affected children participate without discrimination.
Project 51 is a small contribution towards this awareness program where we request the community to donate a small amount of Rs. 51 to Power In Me Foundation every month towards the larger goal of achieving awareness and fund raising that will be used to organize camps, awareness sessions, capacity building initiatives, scholarship for rare, research projects and entrepreneurial initiatives.
People can donate any amount. Section 80G tax exemption is applicable to anyone who donates more than Rs. 500.
Just like Milaap or Impact Guru — view real-time patient profiles with verified medical diagnoses, video stories on our YouTube channel, and direct hospital funding.
Spinal Muscular Atrophy (SMA Type 2)
Gene replacement therapy & specialized BiPAP respiratory assistance at SGPGIMS, Lucknow.
Gaucher Disease Type 1 (LSD)
Lifelong Enzyme Replacement Therapy (ERT) & spleen care at KEM Hospital, Mumbai.
Thalassemia Major
Bone Marrow Transplant (BMT) & daily iron chelation at IPGMER & SSKM, Kolkata.
Connect directly with Power In Me Foundation's medical desk to verify hospital estimates and launch a community crowdfunding campaign with 0% platform fee.
Select a dedicated track to support. Every contribution directly funds impactful support systems, therapies, education, and advocacy.
Empower rare warriors, PwD, and EWS writers to publish their books and share their stories of resilience.
Provide psychological counseling, counseling camps, and peer support groups for rare disease warriors and caregivers.
Fund expensive genetic mapping, genetic diagnostics, and specialized laboratory check-ups for patient verification.
Provide critical support for procuring orphan drugs, specialized medicines, physiotherapy, and speech therapy.
Support tuition fees, reference materials, study aids, and home-coaching for young rare disease warriors.
Sponsor mental wellness training, caregiver support groups, respite care aids, and safety materials.
Equip warriors with computer literacy, content writing, design skills, and work-from-home vocational opportunities.
Organize diagnostic health checkups, distribution of hygiene kits, and awareness campaigns in remote Indian villages.
If you or a loved one is battling a rare disease with high treatment costs, connect directly with Power In Me Foundation. You can call our helpline, email our coordinators, or fill the intake form below.
Direct Helpdesk Channels (Instant Response)
Thank you for reaching out. Your case details have been received by the Power In Me Foundation Medical Desk. Our coordinators will review your hospital documents and contact you within 24 hours.
Need Immediate or Emergency Assistance?
Call Helpline: +91-8851537816
Direct Email: mpowerinme@gmail.com
Power In Me Foundation
Power In Me Foundation is a registered trust committed to maximum accountability. Your contributions are securely handled and certified for tax benefits.
Get 50% tax exemption under Section 80G of the Income Tax Act.
Registered under Section 12A. Reg. No. 1109 (Delhi/NCT).
Registered for Corporate Social Responsibility. Reg No: CSR00072780.
Pathfinder Ai is an International Rare Hackathon Winning Ai based solution that immediately benefits the Patients (Individually & Patient advocacy groups), Families, Health system becomes more streamlined from symptoms to diagnosis timeline and Clinicians get better organized data to initiate their investigation. It helps to reduce the time needed for diagnosis of rare and chronic diseases and connecting the patients to the respective specialists nearest to their region.
Connect with us to schedule a live walkthrough of the working prototype.
See how Pathfinder AI bridges the gap between symptoms and diagnosis.
Help us scale this award-winning AI tool to reach patients and doctors across remote corners of India. We are currently raising funds for a pilot project in rural areas which will involve conducting health camps, training the workforce, purchasing devices like laptops & tablets, worker salaries, transportation, cloud hosting, and other services.
Your contribution provides medicine, therapy, and hope to thousands of families across India.
